19/10/2020 - Lecture 'Rare diseases: epidemiological research challenges and opportunities'

Guest speaker: Prof. Franz Schaefer (Center for Pediatrics and Adolescent Medicine, Universität Heidelberg)

Organiser: Department of Internal Medicine and Pediatrics

In this lecture Prof. Franz Schaefer guides you through the challenges of epidemiological research in rare diseases based on his extensive experience in different consortia. He sheds a light on the GDPR challenges encountered in registries, and mostly he points out the interesting opportunities and impact that epidemiological research in rare diseases can bring.  Prof. Franz Schaefer is Chief of the Pediatric Nephrology Division at Heidelberg University Hospital. With his unique track record in clinical and epidemiological research, and his special interest in rare diseases, he is perfectly placed as the Chair of the Coordinators of the European Reference Networks (ERN), an international network of specialists helping patients with rare and complex diseases getting an accurate diagnosis or proper treatment. 

To be announced19/10/2020 16:30 - 18:00N\A
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